Day 16 - Wednesday 11/21
I get to stay with my baby girl in the hospital tonight - yay, but know I’ll miss the little man tonight as well. We’re taking an early nap together. Brooke had another renal US today and all looks good. She appears to be emptying her bladder on her own, so far no worries. She also had her swallow test and passed with flying colors. I was a little worried about this one, but she had no issues and the speech therapist was very happy with the results. Babies/children with Chiari malformations can have issues with the flap that keeps the food and air in the right pipes, so this is definitely something we have to watch for in the future. If she starts having swallow issues this could be her Chiari becoming symptomatic or hydrocephalus setting in. Praying all stays as is. She’s a very strong 2+week old and is passing everything with flying colors. She has a car seat test scheduled for next Monday and she will likely see the ortho before heading home, but that is not for sure. We will likely be visiting the SB clinic at Children’s in Lincoln Park on weekly or bi-weekly basis for the first couple of months which is going to be tough, but we’ll get through it.
Steve and Braxton came up to visit baby Brooke this morning and to pick me up. I actually got some sleep last night. We got our early nap in and then we slept on and off throughout the night. It was a quiet, uneventful day with Brooke which is always good. I feel bad leaving her and I won’t get back to see her until tomorrow morning. Made sure she had plenty of milk and she should have enough to get through tomorrow morning. I think I’m going to head down early because we don’t have daycare, Steve’s going to work at the ski shop and Aunt Debbie can watch be until 1pm, so I’ll have to head home around 12pm. I’d like to try and get back up to stay the night Friday night too, but Steve will be working at the ski shop on Saturday as well so we need to have some coverage for Braxton on Saturday too. SOOOOO glad this will be (should be - keeping my fingers crossed and praying all goes well) the last weekend we’ll have to find help with Braxton since Brooke should be coming home on Tuesday. Can’t wait. Let the sleep deprivation and adjustment begin! LOL
Not much else to report for today. Hope everyone had a great Thanksgiving and enjoyed some nice, warm, moist turkey!
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